Patient-Support-Groups

 

EPP Patients:

 

The Netherlands

Patiëntenvereniging

www.epp.info

 

Switzerland

Schweizerische Gesellschaft für erythropoietische protoporphyria

www.sonnen-allergie.ch

Belgium
Belgian EPP Website in the process of starting a patient association
www.eppinfo.be

PORPHYRIA Patients:

 

USA

American Porphyria Foundation

www.porphyriafoundation.com

 

Italy

Associazione Malati di Porfiria (AMAPO)

www.amapo.it

 

Australia

Porphyria Association

http://www.porphyria-australia.org/

 

Denmark

Porphyria Association

www.porfyrier.dk

www.porfyriforeningen.dk

 

United Kingdom

British Porphyria Association

www.porphyria.org.uk

 

Japan

SAKURA Friends - Japanese porphyria patient group

www.sakuratomonokai.com (japanese)

South Africa

Porphyria South Africa for patients and professionals

http://www.porphyria.uct.ac.za

 

Switzerland

Schweizerische Vereinigung für Porphyriepatienten

http://www.porphyria.ch